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Pituitary tumor symptoms: joint, muscle and body aches

Neuroendocrine Tumors (NETs) | Last Active: Jul 18 1:10pm | Replies (146)
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@colleenyoung

Hi @arronb, I'm sorry to hear that you do not yet have answers for your symptoms. I'm glad to hear that you were able to seek care at Mayo Clinic. Were you diagnosed with a pituitary neuroendocrine tumor (PitNET)? What did the MRI show?

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Replies to "Hi @arronb, I'm sorry to hear that you do not yet have answers for your symptoms...."
arronb | @arronb | Jul 15, 2023

MRI showed a small tumor and blood work high igf-1. I was diagnosed with acromegaly disease and July 6th I had my tumor removed. I'm currently at home recovering. Some symptoms are still here, I'm worried about my joints and hope we caught this rare disease early enough. I wish there were more people who relate who can talk with me.

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