When I was first diagnosed, Dr. Greenburg at Stanford MC. told me that five years was the average survival. The single biggest factor here is that treatment for MF has made huge advancements in the past few years, and there are some REALLY promising things coming just around the corner. Nobody other than God knows how long any of us have in this world. So, I just take it one day at a time, and consider each day a victory. Everyone is going die, and there isn't any doctor that knows when that will happen. In the mean time do your best to take care of yourself.

My mom lived with it for almost 30 years so I am not sure why your doc says only five year. I might look or a second opinion.