My husband was diagnosed with multiple myeloma in October 2022 and had an autologous transplant in February 2023. He was in the hospital 9 days in October, 5 days in December, and 8 days in February. (We were able to take advantage of the advanced care at home program and go home the day of the transplant, but had to go back to the hospital when he got a fever.) I stayed with him the whole time, because that’s where I wanted to be.
There was a folding couch at both hospitals that slept pretty well. I took a very thick blanket to use as padding and my small travel pillows. I was not a lite packer. There was a medium sized cabinet with three shelves for our use in both hospitals, and room to store bags under a counter at Mayo.
At both hospitals there was the option to buy a companion tray for meals. At Mayo Jacksonville it was $10. I also had non-perishable groceries there.
When admitted for the transplant, I was not allowed to use his bathroom. I set up a schedule for family members to stay with him while I left to shower. That was for my peace of mind. I know the hospital staff can take care of him when I’m not there, but there were times when he could barely tell me what he needed. It was helpful to him for me to call for help on his behalf.
If you don’t live in the town of the hospital, check out the hospitality houses on site. We stayed at the Gabriel House of Care in Jax during his transplant prep and were very pleased.
Message me if you’d like to connect via phone.
Hello @papad i'm very sorry about the multiple myeloma. I dont know much about that one, is he doing better now? You guys must have been living really close to the hospital, because from my understanding, the transplant procedures are the same across the entire country (and rules and requirements like living within five minutes away) . May I ask which hospital? So far, I havent had much luck with my insurance type (Tricare Select) and any advanced care at home programs. One thing i wished i would have known was that some of the hospitals allow transplant patients to stay in the actual hospital the first few months, (like MD Anderson). I think that initial barrier i had to finding caregivers would have been alot less burdersome a few months back. Anyways, I'm forced to share a bathroom with my caregiver at the transplant house. these are all great things to hear and know about!!! Best best wishes to you!