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Has anyone stopped taking camzyos? I have stopped and feel very sick.

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 29, 2023 | Replies (40)
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@pnwman19

Hi,
I actually recently had a myectomy at Mayo Clinic and was told to stop Camzyos at 3 weeks. I ended up being able to stop at 17 days and was fine going through the surgery. I was also on 15 mg, Camzyos total for almost a year. Can I ask what reason they gave you to come off of the Camzyos at 4 weeks?

I didn’t experience any withdrawal effects at all when I stopped cold Turkey. The drug has a very long half life which can help make quitting abruptly not too difficult. But everyone is different.

Happy to help with any additional questions you may have since I recently went through what you’re going to go through.

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Replies to "Hi, I actually recently had a myectomy at Mayo Clinic and was told to stop Camzyos..."
Debra, Volunteer Mentor | @karukgirl | Jul 11, 2023

That was very encouraging information @pnwman19, thank you for sharing that, and Welcome to Mayo Connect. I'm so happy to hear that everything went well for you both before and after your open heart surgery. I had mine at Mayo Clinic too, and even though it's not a fun experience at all, being at the world's finest facility truly makes a difference. The doctors, nurses, transporters, housekeeping, everyone...make a difficult situation so much better. The care could not be better, and it really helps in recovery. How are you feeling now? Have you noticed that each day you get a little better?

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