Welcome to Connect, @snakebite It’s so important for us to keep a positive countenance especially when facing a long term condition. You’ve certainly got a great attitude of not just sitting around and crying, but making sure to get up every morning, to take care of yourself, to look your best and to find something to be grateful for daily! Those are powerful words and actions to keep you motivated. Thank you for sharing this reminder to those who might be wavering.

You’ve faced quite a journey with myelofibrosis with so many different treatments over the last 15 years. Was a stem cell treatment ever discussed as an option for you?
You must feel like a slug by the time your hemoglobin gets below 8. I’ve had that happen and the energy level just plummets!

I surely hope this newest medication, momelotinib continues on its fast-track approval for you and other MF patients. You piqued my interest so I did a little reading about it. Looks promising and holds hope for so many suffering the effects of myelofibrosis when other treatments have failed.

Thank you for sharing your experience and gracious attitude. You never know how many people you may be giving that all important nudge to. ☺️

What were you grateful for today?