← Return to SDHB Positive and Ga-68 Dotatate Scan question.

Discussion
Comment receiving replies
@coachv

Exactly. Neck to pelvis. I have had kidneys and liver issues for a while.
Out of nowhere, my new primary found that lump in my neck first week of June. Already had kidney surgery scheduled for end of June. Day before kidney surgery I learned that I have the SDHB mutation. Family medical history does not exist. They are all dead in Eastern Europe. Just about everybody I remember (been here longer then there) died from cancer of one kind or another. June has not been a very exciting month in hour family. Super glad I found this group. I will need to start a separate thread on hockey players and rare diseases here :-). Thank you again !!!

Jump to this post


Replies to "Exactly. Neck to pelvis. I have had kidneys and liver issues for a while. Out of..."

My husband is adopted. Makes medical histories interesting in our family, too. I understand.

I'm glad they did a thorough scan on you. 🙂

And best wishes for your kidney surgery. Sounds like you have a lot on your plate.