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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Hello @lgkent, Welcome to Connect. I also have lymphedema in my legs which does make the neuropathy worse but I only have numbness with my neuropathy and no real pain so I know it has to be difficult for you. I shared my neuropathy story and what has helped me in another discussion here - https://connect.mayoclinic.org/comment/310341/.

Coping can be difficult for a lot of us with neuropathy. Here's a discussion that might be helpful:
--- Acceptance: Anyone have difficulty accepting new limitations daily?: https://connect.mayoclinic.org/discussion/acceptance/.

I think it's great that you have taken the first step in learning more about treatments and what has helped other members. One website that I have found extremely helpful is the Foundation for Peripheral Neuropathy. They have a lot of resources and reference information including video webinars , alternative and complementary treatments, research and more -- https://www.foundationforpn.org/living-well/.

I am able to wear compression socks to just below my knees during the day which does help with the lymphedema but makes my legs somewhat uncomfortable. Fortunately for me I don't have pain so it's just a comfort issue of having the legs squeezed all day. I do make sure I put lotion on my legs nightly to keep the skin moist to help with the nerves.

Is it difficult to control the swelling?

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Replies to "Hello @lgkent, Welcome to Connect. I also have lymphedema in my legs which does make the..."

Since I can't use compression for the lymphedema swelling, I do a manual lymphatic drainage massage on myself daily and see a trained massage therapist weekly. That's really all I can do at this point.