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Essential Thrombocythemia (ET): foods, diet, nutrition?
Blood Cancers & Disorders | Last Active: Sep 15 8:03am | Replies (112)Comment receiving replies
There's some research that indicates that the driver mutation can be detected years or even decades before ET is activated. Could some people have the mutation and never develop an MPN?
The thinking seems to be that ET is not inherited like eye color, but that a predisposition to mutate may be inherited if you are exposed to certain carcinogenic factors that have not been identified. Given that Dad also had ET, I passed that info to my son and brother and told them to keep an eye on routine CBCs.
Fwiw, there is a move to get MPNs recognized by the VA. A lot of Vietnam vets exposed to napalm and Agent Orange developed MPNs. I know one right now a little older than me with MDS. Sadly, a lot of service members will have died be for the VA adds MPNs to the presumptive list. There is an MPN group working on this, MPN Advocacy and Education International, I believe.
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OH MY GOSH! I'm going to have to get in touch with them. I finally won my 100% Service Connected...but i'm having an extremely hard time getting the VA to acknowledge my blood disorder or the family of disorders it comes in...and even my spenomegaly. And I'm super super frustrated because I believe I deserve back pay for 25 plus years!!! and their initial wrong code. Everyone in my family is wondering (or did so 25 years ago) on how I got this. There are two theories...the biggest is that I came across a chemical in the gulf (I did 70 days straight hazardous duty in UAE, on the island called Masirah), but no else doing close duty with me got sick (and i married one of them). But i would be the only person who collected the most dead things off the beaches of the gulf right there. I use to collect shells on the beaches because i found those things extraordinary (in that area of the world). I would then soak the shells in heavy bleach. for days. And i may have walked into a transmitting attenae field. The other theory was that, at the age of 15 I lived in Holland, on a dairy farm. And was possibly exposed to something used on the farm. That particular family - someone died of Leukemia, much later. About ten years or so after i left. No one in my family has any history of E.T. but then again, they have a severe history with blood clotting and heart issues and diabetes. And I asked them to get tested many years ago (and as you would know how distant family is...they refused). The experts (leading researcher Dr. Teferri) said that my PMT came about because of the drug the VA put me on called Anagrelide. I even had a son while being treated with it (until i decided i didn't want to take it anymore around the second month of pregnancy).