Plant-based diet for autoimmune?

Posted by bayhorse @bayhorse, Jul 7, 2023

I'm wondering if any of you have had experience with or know anything about a completely plant-based diet for autoimmune diseases. The AIP diet allows meat and poultry and fish, so I'm not referring to AIP (which I did and found unhelpful). I have been having lupus flares, and several friends have mentioned that I should investigate a completely plant-based protocol. This seems to be completely contradictory to AIP tenets, which steers away from nuts, grains, legumes, etc. But there's apparently (?) medical thought supporting the plant route for autoimmune diseases.

I am already very careful about my diet as I have celiac disease and ulcerative colitis, so I steer clear of processed foods, sugars, bad fats, etc., and am strictly gluten-free.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

@SusanEllen66

@gigi4 an autoimmune disease is one where your own immune system is attacking your body.
Normally it works as you described.

Autoimmune disorders are baffling because something happens that makes your immune response go haywire attacking the body it’s supposed to be protecting.
Therefore, the last thing you want to do is boost the power of this predator.

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Agreed. It seems backwards, but my immune system is strong, but is attacking me.

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@cherylmcg

Thank you. I wonder what your symptoms are and how you were diagnosed with Vasculitis?

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@cherylmcg well, Vasculitis is basically an “umbrella” term for about 15 or so different diseases.
I was diagnosed in 2015 with Polyarteritis Nodosa. I had a large, swollen rash on my calf that was very painful. My dermatologist took a punch biopsy and diagnosed me with PAN.
The PAN damaged the nerves, and arteries in my legs and feet so I now have peripheral neuropathy, and Raynaud’s disease.

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@griffin1120

Agreed. It seems backwards, but my immune system is strong, but is attacking me.

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@griffin1120 yes, and that’s why we do not want to do anything to make it stronger. It has turned against you.

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@bayhorse
Hi,
I was vegan for years before I developed symptoms and was diagnosed with mixed connective tissue disease. A new GP recommended that I do an elimination diet. While I was in the elimination phase - still vegan, but cut out soy, all nuts except almonds, nightshade vegetables, etc. and ate 10-12 servings of organic vegetables plus some fruits, legumes (no peanuts), and almost no grains (except rice and gluten free oatmeal) - I felt great, physically. BUT, it got to the point where I hated eating and lost 30 pounds. My doctors say I'm "tiny," my husband worries about how small I am, and I don't like how I look, but it's been hard gaining the weight back.

I found out I'm sensitive to peanuts, which I love and have cut out, and probably some other things too but not as obvious as the peanuts. I still try to eat 9-10 servings of vegetables a day and limit processed foods and caffeine. When I have a flare, I cut out sugar, caffeine, and processed foods entirely, which helps, but it sounds like you already do that.

Regardless of the debate on this topic, it's important to make sure we get adequate amounts of vitamins and minerals to prevent deficiencies.

Despite the negatives, I'm glad I did the elimination diet because I have a better idea of what foods do and don't work for me. I hope you figure out what works for you.

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@erikab

@bayhorse
Hi,
I was vegan for years before I developed symptoms and was diagnosed with mixed connective tissue disease. A new GP recommended that I do an elimination diet. While I was in the elimination phase - still vegan, but cut out soy, all nuts except almonds, nightshade vegetables, etc. and ate 10-12 servings of organic vegetables plus some fruits, legumes (no peanuts), and almost no grains (except rice and gluten free oatmeal) - I felt great, physically. BUT, it got to the point where I hated eating and lost 30 pounds. My doctors say I'm "tiny," my husband worries about how small I am, and I don't like how I look, but it's been hard gaining the weight back.

I found out I'm sensitive to peanuts, which I love and have cut out, and probably some other things too but not as obvious as the peanuts. I still try to eat 9-10 servings of vegetables a day and limit processed foods and caffeine. When I have a flare, I cut out sugar, caffeine, and processed foods entirely, which helps, but it sounds like you already do that.

Regardless of the debate on this topic, it's important to make sure we get adequate amounts of vitamins and minerals to prevent deficiencies.

Despite the negatives, I'm glad I did the elimination diet because I have a better idea of what foods do and don't work for me. I hope you figure out what works for you.

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Thanks much for sharing your experience and information. I appreciate it!

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Thanks, cpd. Wondering who did the food sensitivity test? Was it an allergist?

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Has anyone with an autoimmune disease followed Dr. Brooke Goldner's diet? I checked her website because a study she did was mentioned in one of the articles our group mentor John referenced when I first posted to ask re: plant based diet for autoimmune issues. She had severe lupus and other problems and apparently reversed them -- completely -- through diet.

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@lucylulu5280

Hi @bayhorse - No, I don’t follow a specific plan. That’s one of the nice things about plant-based is that’s the plan - plant based foods. 😋I do try to eat the whole plant as much as possible (ex I eat edamame but not soy milk).

I’ve found that religion, politics, and protein are three topics I try to avoid discussing! But I’ll go there for you. By eating a wide variety of vegetables, nuts, seeds, and legumes each day, I get about 20-30 grams of protein per meal. If I add something like pea powder to a smoothie or use chickpea pasta, I can get about 30-40 grams per meal.

Personally, since I’ve never been told I have a protein or iron deficiency, I don’t worry about it and probably only get about 60 grams total most days.

For reference, I’m 55, strength train four days a week, and hike 8-10 miles in the Colorado mountains every weekend.

I do take a B-12 supplement as that is a nutrient you can’t get from commercially grown plants in the US.

Having said all that, I know many people who say they don’t feel their best on a diet like mine. So definitely, talk to your doctor and listen to your body.

There are so many great vegan cookbooks and chefs on social media. I really like the Oh She Glows cookbooks by Angela Liddon.

Good luck and good health!

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Thanks much for "going there," lucylulu, and sharing your information. I do appreciate! And will check out the cookbook you recommended. Wishing you the best...

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