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Life expectancy after heart transplant for GCM
Transplants | Last Active: Jun 14, 2016 | Replies (13)Comment receiving replies
I recognize that dance. It can be really helpful to talk about the elephant in the room together. Often people resist sharing their biggest fears and concerns with each other because it will make the worst come true or one doesn't want to destroy hope that they other person may have. However, I have found that frank conversations about fears can help rebuild hope together.
Are you and your son able to talk openly about your fears?
Replies to "I recognize that dance. It can be really helpful to talk about the elephant in the..."
Thank you for connecting with me today Colleen.I've really appreciated not being on my own with this today. It has been especially difficult as our son has just got back from a short break whilst not being well. He's had a virus/bug (cold/sinus issues) for over a month and is dragging his heels getting to the docs. I'm convinced he'd be better going to the transplant clinic and get checked out thoroughly but it's the last place he wants to visit!<br />
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I've shared my concern/fears so the ball is in his court, so to speak....<br />
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Thx again. L<br />
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I am but it's more difficult for him. I previously worked as a Counsellor/Therapist which sometimes does/doesn't help! He has a big dose of denial coupled with great strength. <br />
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My need is to decide whether we should relocate near to where he is... Whilst respecting his life and needs. We spend a lot of time 'visiting' over one/two nights which is not quality time or cost effective. I'd hate to live with regrets!<br />
We have 5 years to retirement but we could move sooner if time was/is of the essence? It's difficult to know what to do but proving costly in more ways that one- financially, emotionally, health, lifestyle... Etc etc <br />