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Cortisol deficiency, but with weight gain

Autoimmune Diseases | Last Active: Jun 16 7:34pm | Replies (101)

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One of my Endocrinologist is a U of M doctor and she don’t understand why my cortisol levels are low and I’m gaining weight either. I have another Endocrinologist (not U of M) that had actually did the stem test and is the one that wants me on steroids. But she doesn’t know why I’m gaining weight either.

When I went back through my charts to look at my tests I had seen a U of M doctor back in 2016 and my cortisol levels were so low that they were flagged in my chart and that’s why I don’t understand why that doctor never did anything either, and that’s supposed to be one of the best hospitals in the country. 🤔

I actually have all the symptoms of Hashimoto’s disease, but because my thyroid levels are in the normal range, even though it may be towards the border of those normal ranges, they will not even consider it… any of the doctors. My right side of my thyroid is also enlarged but because there’s no nodules there they will not look into that further. I just don’t know what to do because it’s like if your blood tests don’t show it then they don’t try to figure out what’s wrong with you. I should’ve became a doctor because it seems like all they have to do is order test and look at them and see their patients for five minutes and if the blood test does not show anything then they say there’s nothing wrong and go home. SMH

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Replies to "One of my Endocrinologist is a U of M doctor and she don’t understand why my..."

@mh10 did you get a thyroglobulin antibody test for Hashimotos?
The regular thyroid test, T3 & T4 doesn’t show hashimotos.
I also have low cortisol but gained weight.

@mh10
OMG, this is the story of my life. I'm almost 50 & I've been BEGGING doctors to help me since my 20s, but my labs are "normal" (they're not really, but I've been told the results that are abnormal, like low cortisol or albumin & abnormal red blood cells, are okay to be "abnormal", that it's actually normal) so even if the doctor is shocked by my symptoms when I go in, when my labs come back, all my symptoms get dismissed. Worse yet, my mother died suddenly before 50, my aunt died suddenly in her early 70s...neither with any sign it was coming other than these symptoms I share with them...and now my 29 year old daughter is developing symptoms!!!! It's been one thing to lose hope, to resign myself to a shorter life than my grandmother, (my mother & aunt's mother), her sisters & mother, who lived into their late 80s to over 100, but the just as futile desperation to save my child is another thing entirely. I don't know what to do next. I've tried going to universities like the University of Pittsburgh with even worse results. I find myself wondering if I need to go to someplace like Cleveland Clinic or Mayo Clinic or Emory University or Stanford University...or if the extra expenses of seeking out these & similar institutions, including the costs of travel & lodging, would just end up wasted on more of the same. 😭