A low place tonight
It finally hit tonight, that my life has completely changed. I am considering redoing my financial plan and spending much more to live where I want to for the next couple of years and then enough is enough. I'm lucky that I have done almost all I wanted to in my life.
I had a wonderful husband, have a wonderful son and family, and followed my interests and abilities in art and music both as a profession and as a center of my life. People keep telling me I am strong, but I feel exhausted now, three months into this diagnosis.
Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.
Absolutely. The feel-good of a nice meal out with a friend is as important as our healthy diet.
I'm so glad you had this much needed experience.
Lobster ravioli. Yum!! I'll have to look for some.
Unfortunately, intermittent depression is part of this disease (as if pain and fatigue weren’t enough).
Storing up tools that work for you when you’re feeling low is a place to start.
For me some of them are:
Meditation
Breathing exercises
Reading
Gentle yoga (preferably outside)
TV series bingeing
Cooking
Chatting with my husband, a good friend (there are only 2-3 I trust for these days) or one of my kids. (and sometimes I have to force myself to do this)
For some people a mantra or affirmation works; something positive you can repeat over and over to yourself to remind you that you are NOT this disease and that you have good things in your life and a better future
Nicely said. Thanks for the post.
You are so not alone. Within about six weeks, diagnosed with PMR, my son shockingly died, developed diabetes. Steroids have wreaked havoc with my body and now on Ozempic, which leaves me quesy a good bit of the time. I am depressed, but I can’t leave others bereft. But you should live where you want just for the fun of it!
Unbelievable. I cannot imagine holding up under all of that at once. My heart goes out to you.
To Paulagcl, and anyone and everyone. We have all been through a lot. When I read some of the stories I know that people can be amazing and such fighters! I wanted to share with all PMR sufferers who have listen to me bang on about my multiple immune disorders, my breast cancer (tumor removed and under treatment), my meyoldisplastic syndrome - ok, enough! I have talked about the wonders of Low Dose Naltrexone to many auto immune diseases and I am again because, I have a new diagnosis and it explaines alot. Sjogren's Syndrome.
I have a new rheumy, she's #3 and she is really a doctor. The first one left me undianosed for 4 years. The 2nd diagnosed the PMR, but stopped trying there and wouldn't talk or explain anything to me. But this one started out by doing a whole slew of new (plus old ) tests that started to make things a lot clearer. That "non-moving" pain that I didn't know what to attribute to, that was the Sjogren's and the LDN stopped it in two days, just like pred does, without the side effects. All my inflamatory markers , including ANAs are normal. Anyway, everyone should ask for tests. Look it up and talk to your Doctor.
I know what you are going gthrough and I wish I didn't. But, I am almost out of it now my choice was to fight back with knowledge so I read all I could about PMR. That is how I came across this great forum. I still have bad days but a great man in my life, and a Kindle bursting at the seams, has helped so much. Keep thinking positive and all my best wishes for the future. Remember, there is an end to this.
Thank you.
If you know any other great men, send them my way! This sure makes me miss my husband, who died many years ago.