Yes, actually, i finally reported it (once reading the fine print for the drug). But, it took me a while to figure that out. To answer you back, they haven't told me if I qualify for the transplant (exactly), but they are in the process of testing my brother. And they cannot find me a match (right now), so they said while they are still taking up time looking for my match, they will start testing my siblings. Listen to whats happened. Its quite a long story, so ill try to keep it short. This has really shaken the rug right out from my entire family. I have a very small family out in California (my mom separated herself from her entire Minnesota family years ago...we are from WSP and IGH area). My family will not even call me to talk to me. Last year, when i was in deep deep trouble (before getting to treatment), they were sortof talking to me. And then I found out from my mom (who just survived the worst even breast cancer), that my sister has a friend who had some type of Leukemia and that person will not seek treatment. Therefore, my sister decided to cut all ties with me (she is 16 months younger, just turned 50 this year). My brother (who is 48) seemed to be on the fence about everything for a while until the Mayo doctors scared him (in interviewing for donation), with that drug Filigrastim. You have to realize that , last year we were all on talking terms until this year when they decided to have a huge intervention to convince me NOT to go thru with transplant! I wanted to be fully inclusive with them, no matter what decisions they were making....and i let my sister sit in one my zoom videos with my transplant doctor (HefaziT). BTW...i absolutely love my doctors up here esp Dr. Tefferi (for all his dedicated E.T. & PMT Research). So my family has disowned me, in the deepest time of need. They will not take time out to to help me in any way, return phone calls, etc. So, thats the real reason i've found you and this forum. And I'm a single, disabled veteran, mother, of a special needs child and a 25 year old daughter who is studying overseas and will not come home to help me.
They have said that i'm a very good transplant candidate (age and health). But i think they are questioning my mental health status. And the transplant team was and is very slow to get any records i had with the VA. But i dont have many psych records. I tried telling them. The VA put me with a therapist last year, just as soon as all this started transpiring. But the two psych docs up there on the transplant team, seem to be writing up extremely wrong facts about me in their post meeting notes. ( i realized after going back to read)