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Prolia treatment for osteoporosis: What is your experience?

Osteoporosis & Bone Health | Last Active: Jul 13 3:27pm | Replies (1246)
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@dsummers1339

Prolia caused a lot of my hair to fall out. Since then I have been diagnosed with 3 autoimmune diseases. Sjögren’s, Lupus and Raynards. Has this happened to anyone else? I have deep pain I’m my legs. Like the bones hurt.

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Replies to "Prolia caused a lot of my hair to fall out. Since then I have been diagnosed..."
cmdw2600 | @cmdw2600 | Jul 10, 2023

I too had significant hair loss that I believe is from Prolia. I had five injections over 2 1/2 years and decided to stop. My endocrinologist told me I had to do something and we landed on Evista because it can reduce the risk of breast cancer, which I have had. But in reading articles about the drug, I found a person shouldn’t take it if they’ve had BC! I stopped taking it and am now using homeopathic methods. Will be meeting with my integrative medicine doctor tomorrow and will report back if I learn anything useful.

I really don’t want to take Reclast as it too lists possible hair loss as side effect. I know bones are more important than hair, but it’s alarming to be able to be able to see your skull! Many oral medication are off the table for me due to GI issues.

Thanks to all for sharing knowledge and experiences.
Cindy

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