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Anyone else have Cystic Fibrosis?

Cystic Fibrosis | Last Active: 3 days ago | Replies (6)
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I am 61, I was just diagnosed with a severely pathogenic CFTR variant of CF and an abnormal lab on the P.PHE508DEL Allele 1. and have chronic bronchiectasis and MAC diagnosed since 2019. I am not sure which came first the Bronchiectasis or the MAC, pseudonomas, and Staph. I just know I ended up in the ER in 2019..
CF runs in my family .My old pulmonologist who diagnosed me with bronchietasis and MAC, (who knew CF runs in my family (my nieces' daughter) did not recommend I get tested for CF.
My new pulmonologist recommended I get tested. Now I am now being referred to a CF specialist clinic.
Am wondering what I can expect, what experiences does anyone have in knowing whether having a variant diagnosis of CF effects the type of treatment or outcomes ? I'm guessing I will have to wait and see, but any advice or thoughts?

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Replies to "I am 61, I was just diagnosed with a severely pathogenic CFTR variant of CF and..."
Pug, Volunteer Mentor | @ckscoville | 3 days ago

@mtyler I saw this posting from 2023, in which you said you were referred to a CF clinic. If you don’t mind my asking, what was the outcome, and what’s been your experience since then?

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