Who out there has Squamous cell cancer that has spread to the bones?

Mine didn’t move to the bones, but was an occult tumor (also known as an unknown primary), that showed up in a ureter, & had blocked, & ultimately killed the kidney. At first it was diagnosed as a rare ureter cancer, stage IV. Then 18 months later showed up as an anorectal squamous cell cancer. I’ve heard “that shouldn’t happen”, “that’s very rare”, even “I don’t believe that” at MD Andersen from the worst dr I’ve seen. It’s very hard to hear those things. I find them unhelpful. In thinking about it, I’ve decided what difference does it make if it’s unusual, rare, or I don’t fit the disease profile. This is where I am, we’re moving forward as best as we can. When it’s said now, I just think “right, I’m unique, lucky me”, & continue on. I guess my point is, I can try to figure out why, but probably never will, so I choose to let that go. I hope that is helpful to you. I’ve learned that all I can do, is reframe my thinking, continue to do what I can to live well, & hope for the best. I hope for the best for you as well.

Mine didn’t move to the bones, but was an occult tumor (also known as an unknown primary), that showed up in a ureter, & had blocked, & ultimately killed the kidney. At first it was diagnosed as a rare ureter cancer, stage IV. Then 18 months later showed up as an anorectal squamous cell cancer. I’ve heard “that shouldn’t happen”, “that’s very rare”, even “I don’t believe that” at MD Andersen from the worst dr I’ve seen. It’s very hard to hear those things. I find them unhelpful. In thinking about it, I’ve decided what difference does it make if it’s unusual, rare, or I don’t fit the disease profile. This is where I am, we’re moving forward as best as we can. When it’s said now, I just think “right, I’m unique, lucky me”, & continue on. I guess my point is, I can try to figure out why, but probably never will, so I choose to let that go. I hope that is helpful to you. I’ve learned that all I can do, is reframe my thinking, continue to do what I can to live well, & hope for the best. I hope for the best for you as well.

@amyb5 @cbarton There is a Personal Message function on Mayo Clinic Connect.
1. Move your cursor to the top right of this screen and you will notice three icons.
2. The middle icon looks like an envelope.
3. Click on the envelope icon and your screen will now be on the Personal Messaging page.
4. On the right of that screen you will see a Compose button with a little pen icon.
5. Click on the Compose button. An email type screen will open for Personal Messaging.
6. In the Send To box type the screen name of the person such as @amyb52 7. 7. In the box What your message is about you can type your subjects.
8. Now write your message.
9. When you are finished with your message and click on Send Message,
10. @cbarton will receive your message and a number will show up on their Private Message icon at the right top of their screen. You can then Private Message one another.

Private Messaging allows you to share your confidential information and no one else will be able to read or see it.

Will you let me know how this works for you?

If there’s a way to message me directly , would you be willing to share the doctors name . My wife was there the first half of 2022 and she wasn’t happy with her “team head doctor”
Thank you

Apparently I'm in the probationary period and can't private message but I'll try again in a few days

If there’s a way to message me directly , would you be willing to share the doctors name . My wife was there the first half of 2022 and she wasn’t happy with her “team head doctor”
Thank you