Diagnosed with Uterine Cancer (Leiomyosarcoma)

Posted by cjacobs99 @cjacobs99, Mar 4, 2022

I was diagnosed with Uterine Cancer (Leiomyosarcoma) this month. Two months ago large mass was found in my uterus. Prior to that, there were no signs or symptoms of large mass. I received my Covid vaccine on 12/9/21 on the first day of my cycle. My period went from being very heavy to light spotting that month. This never happens. Ten days later I went into the ER due to severe pelvic and abdominal pain. A CT scan confine a large tumor (tennis ball) growing in my uterus. I have no history of fibroids and a recent Ultrasound confirms that. Less than a month later I developed Covid(delta/omicron unknown) and my recovery time over three weeks. During that time my uterus/tumor doubled in size, as if I was in my last trimester of pregnancy. A full hysterectomy was performed and biopsy confirms uterine cancer (lmsarcoma). I believe the Covid vaccine and infection triggered the cancerous tumor to grow rapidly in a short period of time causing the pain and discomfort to manifest. Curious if anyone else has experience with the impact of Covid and cancer.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

azhotpets | @azhotpets | Jul 3, 2023

In reply to @azhotpets "Is Dr. Monsoon the retired Dr?" + (show)

Also, can I communicate with this Dr.? Are you in arizona?

dfflores | @dfflores | Jul 4, 2023

In reply to @azhotpets "Anyone here diagnosed with LMS? I don’t think there’s even a specialist in arizona that is..." + (show)

Hi...I too have LMS, was found 2 years ago in my IVC vein, stage 2. Did surgery to remove it and right kidney. It has now returned to my liver and lung now at stage 4. Dr. reviewing options of liver surgery and then follow-up with chemo. Its best to find a specialist who has experience with this type of cancer. Wishing you well...

azhotpets | @azhotpets | Jul 4, 2023

In reply to @dfflores "Hi...I too have LMS, was found 2 years ago in my IVC vein, stage 2. Did..." + (show)

Thank you. I do agree I need a dr. That specializes in LMS. In arizona, I have not found one yet. Wishing you no more spreading only shrinking!💕

Helen, Volunteer Mentor | @naturegirl5 | Jul 4, 2023

In reply to @azhotpets "Anyone here diagnosed with LMS? I don’t think there’s even a specialist in arizona that is..." + (show)

@azhazhotpets Since you are looking for a physician who specializes in LMS, I’m wondering if your doctor will make a referral to Mayo Clinic in Arizona.

Mayo Clinic Appointment Request
— https://www.mayoclinic.org/appointments
There are also hospitals and physicians in Arizona who are affiliated with Mayo through the Mayo Network. Here is a link to read about it and to see if there is a clinic near you.

Mayo Network:

— https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members

Have you or your doctor been in contact with Mayo Clinic or the Mayo Network?

karynk | @karynk | Jul 9, 2023

In reply to @thompson371 "Dr. Monson told me chemo does not treat a sarcoma cancer. My mother also had a..." + (show)

New treatments have changed every year.

karynk | @karynk | Jul 9, 2023

In reply to @dfflores "Hi...I too have LMS, was found 2 years ago in my IVC vein, stage 2. Did..." + (show)

Yours sounds just like what I’m going through. It returned to the liver and lungs. Chemo took care of it and a year later it is back in the lungs. I’m doing radiation and then a chemo pill this time.. Prayers for you.

dfflores | @dfflores | Jul 9, 2023

In reply to @karynk "Yours sounds just like what I’m going through. It returned to the liver and lungs. Chemo..." + (show)

Hi...thanks for your reply. Just curious as to which chemo drugs that you had? How was the chemo experience? I didn't have chemotherapy before and don't know what to expect. Sending positive thoughts and prayers to you too. 🙂

Helen, Volunteer Mentor | @naturegirl5 | Jul 9, 2023

In reply to @azhotpets "Thank you. I do agree I need a dr. That specializes in LMS. In arizona, I..." + (show)

@azhotpets I’m checking back to ask how you are feeling today? Have you talked with your doctors on finding a specialist for LMS?

azhotpets | @azhotpets | Jul 9, 2023

In reply to @naturegirl5 "@azhotpets I’m checking back to ask how you are feeling today? Have you talked with your..." + (show)

No. I have to reapply for insurance first. Insurance unfortunately dictates your life.

azhotpets | @azhotpets | Jul 11, 2023

In reply to @dfflores "Hi...thanks for your reply. Just curious as to which chemo drugs that you had? How was..." + (show)

Adriemycin and yondelis chemos start this Friday. I’ll let you know Joe it goes. Best of luck.

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