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PV positive & Jak2 neg - good thing??
Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (36)Comment receiving replies
So far, I may have been eating too much of good things. I mainly eat big plate of a mixed salad with a protein. Very little to no sugar and starch most days. However I seeing very little recommendation on nutrition specifically and what little I've found says not to eat alot of green leafy veges and beans and even mentions cold water fish. It's a little confusing because this is normally considered a healthy diet. I think my insurance will pay for a meeting with a dietician so I may go that route. I do eat alot of salads and seafood proteins. So for now I'm alittle confused, I've changed about half the leaf salad out with Cucumber and talapia is a warm water fish.
Replies to "So far, I may have been eating too much of good things. I mainly eat big..."
Here's a good article, PV is opposite of anemia basically, this article explains what to eat to produce more red blood cells so its foods to limit if you have PV..
https://www.verywellhealth.com/how-to-increase-red-blood-cells-5211834#:~:text=Vitamin%20B12%20helps%20the%20body,fish%2C%20dairy%2C%20and%20eggs.
I have just started a plant based diet. I’ve avoided red meats and high iron content greens like spinach for most of the past 10 years, I believe it has somewhat helped. I am now on Jakafi and have a hemotcrit under 40%.
My next goal is to cut out sugars which I know are bad for me!!
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Things like spinach and red meat produce more hemoglobin so that's why they say to stay away from those kinds of foods.
The shoprite grocery stores all around my area have free Dieticians available for guidance and my local YMCA offers many free health related classes. Try asking your local social services if they know where you can get some free guidance, if your insurance will pay that is terrific. Maybe even try AARP.
Google foods that produce red blood cells and try to avoid them but I don't think there's any harm in a little now and then, I love spinach so I won't eliminate it, I've just cut way back.
Good luck!