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I'm scared. Just sayin... also med ID bracelets?

Aortic Aneurysms | Last Active: Nov 12 10:40pm | Replies (21)

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@ginnycake

Hi.
I understand your anxiety. I spend a LOT of time praying for peace of mind because as long as we keep our blood pressure down and practice “mindful preparation” ( I LOVE that!) we are doing all that we can with the hand dealt. I purchased a necklace instead of a bracelet and it does give me some added comfort. Also I put the info on my i-phone so that if emergency 911 is called, my info will be relayed: the problem and where to take me so as to not waste time, as well as my emergency contact and the number of the cardio- vascular surgeon who is following me.( HOPEFULLY SHE WILL BE AVAILABLE IF A DISSECTION OCCURS.) this is all I know to do. When/if the time comes for elective surgery, I have set up a patient account at the Mayo Clinic and all my data goes to my patient record there even though I have not seen anyone there yet. You don’t mention if you know whether you have a tri-cuspid or bi- cuspid aortic valve( can tell on echocardiogram ) and whether you had the genetic profile done to see if you have a genetic predisposition for this. ( I used Invitae.com, pd. $ 250.00 for 92 possible gene connective tissue issues. This is not me telling you what to do, just an option; You can go to their website to proceed with or without a doctor… they have a clinical geneticist). The answers to these 2 things make a difference into when the elective surgery would be performed. I believe the majority of folks do ok 👌 after surgery. I just found out I had my aneurysm in April (4.2) and have been struggling with anxiety since… however information and ( for me) my relationship with God is giving me peace… also deep breathing helps. A man in this group suggested “square breathing” which has been helpful to me as well, because when my anxiety increases, I have labile hypertension( spiking BP) which is our enemy. Anyway, I have posted pics of the front and back of my necklace( I just goggled medical ID jewelry) . Praying for your peace of mind and a long, happy career, free of health issues. ❤️🙏🤗

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Replies to "Hi. I understand your anxiety. I spend a LOT of time praying for peace of mind..."

Thanks so much - very helpful. I love that you shared the pictures too - nice looking necklace! I do have tricuspid, so that is good. I was unaware of that option for genetic testing though. I am going to look into it because I do have hyper mobility syndrome (which is probably why I have early onset OA) - no one has done any formal diagnostic tests to determine anything beyond that though. Thank you so much! Praying for peace for you as well.