← Return to PV positive & Jak2 neg - good thing??

Discussion

PV positive & Jak2 neg - good thing??

Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (36)

Comment receiving replies
@lynniej

Would love to know what you have found out about foods & PV. I’m sure proper eating helps a lot with fatigue also.

Jump to this post


Replies to "Would love to know what you have found out about foods & PV. I’m sure proper..."

So far, I may have been eating too much of good things. I mainly eat big plate of a mixed salad with a protein. Very little to no sugar and starch most days. However I seeing very little recommendation on nutrition specifically and what little I've found says not to eat alot of green leafy veges and beans and even mentions cold water fish. It's a little confusing because this is normally considered a healthy diet. I think my insurance will pay for a meeting with a dietician so I may go that route. I do eat alot of salads and seafood proteins. So for now I'm alittle confused, I've changed about half the leaf salad out with Cucumber and talapia is a warm water fish.

Before this possible PV, my other PCP a DO advised some supplements in response to my health problems ie. cholesterol, and lack of energy, and those have helped with my energy and overall wellness feeling. I do my best to avoid pharmaceutical medications and try natural treatments.
My DO advised pharmaceutical-grade vitamins and they can be pricy.
The 3 major brands she referred me to were Metagenics, Designs for Life, and Orthomolecular. I was not successful with Orthomolecular staying in stock anywhere. My doc recommended getting as many of them as I could afford. She emphasized fish oil, coq10, and L-Carnitin 1000 mg (L-Carnitin for energy)but I only take 500mg daily. Also the regular vitamins Zinc 50, Calcium, and Vit D 5000 UI. I took several of these anyway but I didn't realize pharmaceutical grade was a higher quality, especially with fish oil.
I do not take a multivitamin... At one point I had a high iron reading but it came back down so that isn't a problem now but for me, I do not take iron.
I found metagenics and Designs for life on Amazon and other places.

I eat pretty healthy, mainly a huge salad with a side of protein. I try to stay away from starch and sugar. My protein is usually salmon burger, tuna, or tilapia however I will have a lean piece of red meat sliced up on my salad on occasion and I will indulge very rarely but do eat a sandwich out sometimes.
My research for PV nutrition says no abundant green leafy vegetables so that has me in a tizzy. I used romaine and leaf lettuce but have cut that 50% now by using cucumbers as the base for most of my salads. My research also says no cold water fish so that leaves tilapia and I guess catfish.
My research says nuts and berries but those can irritate diverticulitis so maybe I can work those in small amounts.
I take red yeast rice pharmaceutical grade for cholesterol so no grapefruit or grapefruit juice.
When my diagnosis is confirmed and if she decided to put me on meds Im sure we will have to re-evaluate my supplements.
This is just what I have done with my diet and trying to keep myself going however it's not meant as advice. I hope it helps with examples. I didn't know they made pharmaceutical-level vitamins.
Although there is an explanation about the green leafy veggies I don't understand it yet.