Scheduled for August 29th.

I am 12 weeks post RALP and bladder surgery to remove cancer tumors. I do my Cagle‘s and walk but still have a lot, a lot of incontinence. I augment pull ups with a washcloth between my leg and go through probably 18 to 20 a day. This limits how far or where I can go from home, this is very frustrating. Urologist says it takes time and I’m not sure what that means’s at four, six, 10, 12 or longer to regain confidence. Any advice would be helpful thank you and God bless.

I foolishly watched those YouTube videos posted by men who were fully continent really early in their recovery. I expected that to happen to me and it didn't. I am 6 months post RALP and can finally see real improvement in my stress incontinence. I never changed pads many times each day, I typically went through two heavy duty pads, one in the morning, one in the afternoon, each put into my depends. In the evening I would take the latest wet pad out and just stay with the depends. But now, when I am just having a normal day (no extremes in activity) I can get by with one heavy pad for the entire day, or two light pads. When I go for a long walk, or play a sport (golf, pickleball) I still leak, but not as profusely as I used to. I found that a condom catheter works very well for 18 holes of golf. I do my Kegels, not as punctually as I should now that I am far more active, but definitely I do some everyday. I do believe my body will soon figure it out and resolve this problem. But a word of caution, one of my friends who went through this years ago, says he still wears a light pad everyday just in case of a cough, or a sneeze or something unexpected. I keep telling myself, being cancer free is worth having a shorter penis, no ejaculations, and incontinence. Some days I believe it, some days I don't.

I was diagnosed with Gleason Score 8 prostate cancer late last summer. I was scheduled for RARP at the end of November but came down with the flu 2 days prior (can you believe that?). Anyway, I actually underwent surgery on Jan. 31st of this year and came back with clear lymph nodes and total encapsulation within the prostate. PSA is < .04 (undetectable) as of 1 month ago. Gleason was revised to 7.

Still fighting (in)continence issues but I had a complication (called lung cancer and a right lower lung lobectomy on April 3rd (discovered as part of the CT scans for the prostate issue. Again, dodged a bullet as I was Stage 1a with no spread to lymph nodes.

BUT, it did put me off my pelvic exercises and I developed a cough due to a chyle leak (chylothorax) and underwent surgery again to fix it on June 23rd. I am now restarting my Kegals and hope to make progress soon.

However, overall recovery from the RARC was actually much easier and much less traumatic than my imagination led me to believe prior to the surgery.

You'll do fine

Sounds like you have had quite a journey. I’m trying to get as strong as I can before surgery and eating as best I can. Thanks for the feedback. Best to you going forward. The worst is definitely behind you. ME

The food that feeds prostrate cancer is testosterone which is a hormone/androgen. ADT stands for Androgen deprivation treatment which attempts to deny the cancer of its food. The ADT medication is a standard treatment and it effects different men in different ways