← Return to Living life after treatment and surgery for Esophageal Cancer.

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@mrgvw

Well done! I too counsel others now constantly... and they are all over the planet. Just a way to give back... thanking those who held my hand through it all. And I agree, so many things are brutally tough on this EC journey... from J tube surgery (I got mine the week after I was diagnosed... and still 3 weeks before my first treatment)... to chemo and radiation to the esophagectomy to a year of immunotherapy. And yes, the post-op journey is the hardest by far! And it's because it is slower than slow... and can be very depressing because changes aren't seen. I counsel others that days and weeks are meaningless... maybe look back at things in 3 month chunks. And at 3 months post-op... you are just getting started. In fact, my second year post-op was waaaaayyyy better than my first year... in every regard... eating, swallowing, digestion, tummy aches, intestinal pains, ass explosions, sleeping... it all just keeps on improving... albeit very slowly. Now I'm pretty much back to normal other than eating a bit less... and much more often. I can even sleep normally now... although I never break the bedtime prep rules! I do spend the first hour in bed up at 45 degrees or so... watching TV. But when sleepy, I can now slide down and sleep on either side... rarely get a bit of reflux... and have never aspirated.

Be well... keep it up helping others! Love it!

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Replies to "Well done! I too counsel others now constantly... and they are all over the planet. Just..."

Hey Do you ever eat food while you sleep at night?