My problem has been going on for 5 years. Felt pressure while sitting.

Posted by lismom5 @lismom5, Mar 22, 2016

My problem has been going on for 5 years. Felt pressure while sitting. Now after biofeedback, physical therapy, removal of my sigmoid and raising my rectum, botox injections, an implant of a Medtronics interstem, valium suppositories, pain pills, and various pain blocks, I am still with constant pain. What else?

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Kelsey Mohring | @kelseydm | Mar 23, 2016

Hi @lismom5. Welcome to Connect! I'm so sorry to hear what you are going through. I know it can be so frustrating when you keep trying new things hoping they will work but never getting an answer. Can I ask, do you have a specific diagnosis? I'm tagging @tanglefoot and @Restless67 who may also be able to provide some support.

lismom5 | @lismom5 | Mar 23, 2016

In reply to @kelseydm "Hi @lismom5. Welcome to Connect! I'm so sorry to hear what you are going through. I..." + (show)

No, I haven’t really had a satisfying diagnosis. Some docs thought this was muscle related and others looked at as nerve pain. Levitator spasm syndrome has been highly suggested, but no real relief has been received.<br />
<br />
Thanks for asking,<br />
Lisa

Kelsey Mohring | @kelseydm | Mar 23, 2016

Okay, well I did find one guy on Connect who has discussed the same problem in the past. Tagging @mm92599, in case he can offer some insight/support.

lismom5 | @lismom5 | Mar 23, 2016

Thank you, Kelsey. I will look forward to hearing from this guy.

LeighO57 | @leigho55 | Aug 16, 2016

In reply to @lismom5 "Thank you, Kelsey. I will look forward to hearing from this guy." + (show)

I just joined this connect program today and everything @lismom5 you have said it what I have mostly been going through. Have you had any success since your last post about this? I am very concerned and my issue has been going on for 9 months now and numerous Dr's and now they want to do another injection. I just want to know what happened and how. My issue started after my nerve block wore off after a CT myelogram. Hope to hear back from you. Would love to hear more from you and your story.