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Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)

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@lizzyeastwood

I had a very similar diagnosis in 2019, pnet incidentally found on a ct scan that was ordered for colon issues. I had a distal pancreatectomy in February of 2020. Tumor was well defined, 2.5 cm, nonfunctioning ki 67 >2 . Surrounding lymph nodes were clear. Surgeon managed to save my spleen. I have scans every 6 months but no recurrence of tumor. I have had no other treatments than the ct scans.
I know it’s terribly frightening at first but it gets better. Post surgery I’m feeling well. I have gastro issues frequently, but I mostly feel very lucky that the first scan was ordered and the tumor was found early.

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Replies to "I had a very similar diagnosis in 2019, pnet incidentally found on a ct scan that..."

Did you have to get a PET scan before your surgery?