Complex regional pain syndrome or reflex sympathetic dystrophy

I was told by rehabilitation therapist I dont have to be like this REALLY I been dealing with CRPS almost a year in march I have had 2 nerve blocks and refuse to do spinal injection it started from a surgery with my hand and people say things like oh you got arthritis they dont understand but I hope we all can get some relief soon

I don’t recall any reference of negative outcomes of a TKR/ nerve damage when I was speaking to surgeon and reading literature. Therefore, I surprised and a bit angry that I am now going through this CRPS pain. I have told myself and husband that I will not do pain management via more nerve blocks and associated Opioid medications. That’s a road I do not wish to enter. I guess we all will have to find what works for us.

@overwhelmed I'm so sorry you are going through this. I have RSD since 2012. I had a hip replacement and the surgeon cut my tibial, peraneal and sciatic nerves. I woke up screaming and with drop foot. I've been on methadone since then after getting a pain management Dr. Through my attorney. I was diagnosed by a neurologist with RSD. My pain management Dr is well known across the country for ketamine therapy. It works but you have to keep going back after the 5 days of treatment. I now after all this time can deal with the pain for a few months. There is no cure and no its not in your head however it can spread. I now have rotation to the hip in my left leg where it started and it has spread to my right foot and both hands. I too have tried to take my life with sleeping pills. It's not worth it. I want to live. I'm now in a wheelchair cuz I had the other hip replaced and almost 2 years later I got an infection that just wouldn't go away. I had 4 surgeries in the past 6 months. The infection has gone into the femur. My leg is 3 inches shorter than the other one which is useless. The hip has been completely removed after trying a spacer and numerous infections. Hence the wheelchair. I'm so sorry your husband is going through this with all the other problems you have. One other thing I won't get the spinal cord stimulator cuz I have a friend who did and the leads broke off and she had to have surgery again to remove it and get the leads out.. She got a new one put in and tells me that she is still in such terrible pain. Too close to the spinal cord for me. I wish you so much luck my dear. I know what you are going through with this disease. I pray your husband has a good recovery. God bless you both.

Hi I'm renee. I'm very familiar with crps, unfortunately I did a lot of research on my own and tried everything. The only thing that works for me was a spinal stimulator implant. And medical marijuana for some rest and sleep, not sure if either is something u will try but at least there are some options. Talk any time you want. I'd love to listen!

Yes unfortunately it has effects on other parts of my body. I get sick more often than I used to, my doctor said it is normal with this disorder. It never has the same medical effects on each person that has it. So basically I do my own research and try to make it not change my life...... which sometimes it does. Not enough research because it's so rare. Again keep in touch. I'll always be hear to listen or trade information. Feel good today.