← Return to Complex regional pain syndrome or reflex sympathetic dystrophy

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@rsnowflake

Yes unfortunately it has effects on other parts of my body. I get sick more often than I used to, my doctor said it is normal with this disorder. It never has the same medical effects on each person that has it. So basically I do my own research and try to make it not change my life...... which sometimes it does. Not enough research because it's so rare. Again keep in touch. I'll always be hear to listen or trade information. Feel good today.

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Replies to "Yes unfortunately it has effects on other parts of my body. I get sick more often..."

I've had RSD for 7 years now. It started after a total hip replacement. I woke up screaming and had drop foot. You are right about one thing. The weather plays alot with this disease. I live in Florida and when hurricanes comes near us and the barometric pressure changes my RSD is out of control. What started in my left leg is now in my right foot and both hands. I see a pain management Dr who uses ketamine to help me with the pain. He's wonderful. He's even on the news from Time to time. His name is Ashraf Hanna. He is in Clearwater Florida and sees people from all over the country.. I also developed Gastropyrisis. It's a disease where my stomach doesn't empty. Instead my food comes back up sometimes even when I'm sleeping. I take several medications for my stomach. I'm also taking gabapentin and methadone for my RSD. It does spread. I've met a few people who have it full body. The disease has been around for over 100 years. It started back in world War 2. Dr's couldn't understand why soldiers who had to have a limb amputated were in this insane pain. At the time they called it phantom pain. The patients were given high doses of morphine to control their pain. Sometimes it worked and others would scream constantly. It has only been a few years since the Fda began to recognize it as a chronic pain. I hope I've been able to answer your questions. If I can help I will... In peace ✌ ❤ 🌟 Mary