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Replies to "Success The Ropinerole started working and I have been on it for the last 18 months..."
Sleep Health | Last Active: 2 days ago | Replies (54)
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Replies to "Success The Ropinerole started working and I have been on it for the last 18 months..."
You might want to read the publications of the RLS group. Their advisors think that in the long term the dopamine agonists cause augmentation in almost all. Has to do with a change in dopamine receptors.
I was on them for four years. At first I thought they were a miracle drug. No symptoms, no pain. Great sleep for the first time in my life.
At @ 30 months needed to increase dose. Symptoms spread to arms. Had to go out on disability. Consulted experts across the country. They all said to stop the meds.
Improved but not resolved and worse base line than at time of diagnosis. My physician, considered to be pretty smart says in their experience, augmentation does not generally go away.
If I had to do it again, not sure I would take them. But I will admit I got a few good years but I pay a price now.
So please be careful. Seek multiple opinions.