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PV positive & Jak2 neg - good thing??

Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (36)

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@chella65

Hi back buckaroobanzai, I truly get the pacing one's self. Law school awesome learning category. I hope they also allow you to pace on the exam.
My mother could not teach me needlepoint or crochet because I couldn't sit still, as a kid and most of my life ...now? wow, sometimes I forget how long I've been sitting. I have been devoted to wearing a tracker and I make myself get up and move every hour even if it's just a couple of minutes. Im doing research on eating for and managing PV and getting myself stronger to either beat it up and let it know who's boss. LOL.... I usually dont rest well but fill my night with naps. There is an occasional night I will have normal sleep.

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Replies to "Hi back buckaroobanzai, I truly get the pacing one's self. Law school awesome learning category. I..."

Yes, I definitely relate.

Consider testing for sleep apnea and, if appropriate, CPAP. As fatigued as I am, things definitely improved after I started CPAP therapy. I love my CPAP (actually an APAP) machine!

Would love to know what you have found out about foods & PV. I’m sure proper eating helps a lot with fatigue also.