Yes, I've been struggling with very bad fatigue and if I do to much one day, I'm shot for the next couple days. I've had to really cut back a lot on my activity, very difficult to work so I'm filing for temporary disability. Plus I have my own policy where I'll get 1k a month. I love what I do (Senior Advisor) and really want to work. I was just diagnosed in April so still trying to find the right hemoglobin number that works for me where I feelmore myself. I suspect I'm anemic from the 5 pints removed and that caused bad fatigue as well. I go this Tues for a CBC and hoping they'll approve a Saline infusion to help me feel better.
My GP feels very strongly I'll get back to very close to my usual energy level. What depresses me a little is I'm reading posts from some that have had it for years and still have bad fatigue. The shortness of breath is also bad and very painful hands every morning and seems to be lingering longer now. Big plus is after they took about 3 pints, my crashing headaches stopped.

I'm gluten free and dairy free, they cause inflammation. If I eat gluten my joints ache a lot, has no affect on my stomach. Boy do I miss good bread but not worth what it does to my body.

Hang in there, we're all in this together. This forum is a lifeline for me!