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Immune Suppression Meds

Transplants | Last Active: Jul 7, 2023 | Replies (44)

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@l0lag0lag0b3

Hello @hello1234
It's always good hear from you, glad to hear you have stabilized.. which is very important in this journey

I have been offline for sometime, first issues with my wife, then myself... life goes on, My wife has the lower lumbar (L3/L4) issues the bone is degenerating.. so visit to Couple of Dr's (spine & endo). Sometimes I wonder if the Kidney donation has triggered this..not sure but I am keeping on researching this. (obviously no Dr is going to acknowledge that)

On my end couple of things: GFR is constant, no infection etc, however the Lymphocyte count is decreasing.... from what I read around, Tacrolimus / low nutrition diet can cause this - hence I was asking you that if noticed in upward change in the Lymphocyte count after reducing the Tacrolimus levels.
I must admit .. I am not a big eater.. net net my calories intake is lower than what I am burning, So I am getting stuffed with more food, eat Fish and added low fat turkey. Let's see what the next test reveals. There is a talk of reducing my tacrolimus does from 1.5 mg to 1mg.. let's see what happens.
Yes I have been reading about the quality of local nephrologist (post transplant) it is sometimes questionable ! ( not sure if such a comment is repulsive to some). but such is life..
At a national level all Nephrology Doctors treating post kidney transplant .. need to have minimally fellowship in Kidney transplant.

Let me know if possible - about the Lymphocytes as they are one of the primary fighters of infection be it viral or bacteria: example being Covid.
Regards

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Replies to "Hello @hello1234 It's always good hear from you, glad to hear you have stabilized.. which is..."

@l0lag0lag0b3
Neutropenia and leukopenia is definitely helped with the reduction of immune suppression meds!
I went from 1000mg Mycophenolate two times a day to 250mg twice a day.... MAJOR difference. I went from 1.0 WBC with daily Procrit shots.....to 5.0 WBC with no shots 😊