← Return to Essential Thrombocythemia: Looking for information and support

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@nohrt4me

"Just a bump in the road"?

Hmm. How about the fatal coronary or pulmonary emboli, the amputations, the DVTs, the acquired von Willibrand's, the point where the meds stop working or the dosages get so high they makes you sick? Or how about the enlarged spleen, eating and bowel problems, and fibrosis pain? Or even just the fatigue and chronic migraines that some patients get?

You can have a good quality of life for many years if you are willing to make adjustments and take care of yourself.

But calling ET a "bump in the road" is dismissive of people's suffering and not very supportive.

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Replies to ""Just a bump in the road"? Hmm. How about the fatal coronary or pulmonary emboli, the..."

Thank-you I second that, absolutely agree, everyone of us has their journey. ET is a blood cancer there are mutations in our blood and any mutation comes under the CANCER umbrella and is not something to shy away from. I am not afraid to say the word CANCER. My story is long and I won't bore you I'm a survivor having had a few major events, lucky and thankful to be alive. I am a fighter and will fight this and live with it.