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Essential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Jun 17 9:11am | Replies (484)Comment receiving replies
1. Thank you for your service. I, too, was in the Navy a long time ago!
2. Appreciate reading all your journey these past 25 years. It's good for us to have your history when we are so new to all this - I only learned six months ago and still learning to deal with it all.
3. Yes, my heme doc said the same thing: not all ET = cancer. I'm Jak2 and it's a blood disorder. Period. Sure, it can mutate in time - or not. Better to look on the positive side!
Living? Absolutely! Any of us could get smashed by a big truck on the highway on any given day. ET is just a bump in the road. Blessings for your healing and dealing!
Replies to "1. Thank you for your service. I, too, was in the Navy a long time ago!..."
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"Just a bump in the road"?
Hmm. How about the fatal coronary or pulmonary emboli, the amputations, the DVTs, the acquired von Willibrand's, the point where the meds stop working or the dosages get so high they makes you sick? Or how about the enlarged spleen, eating and bowel problems, and fibrosis pain? Or even just the fatigue and chronic migraines that some patients get?
You can have a good quality of life for many years if you are willing to make adjustments and take care of yourself.
But calling ET a "bump in the road" is dismissive of people's suffering and not very supportive.