Replies to So good to hear from you, @kaposi! You know we were all holding our breath. :-)…

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Just Want to Talk | Last Active: Aug 11 5:55am | Replies (27)

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@colleenyoung

So good to hear from you, @kaposi! You know we were all holding our breath. 🙂

I'm glad that you were able to speak with a counselor. Real time talking with someone means a lot, especially in the moment. Besides dealing with the diagnoses of Kaposi's sarcoma and HIV, and just finishing 20 rounds of chemo treatment, waiting for a 6-month check-up is stressful. I'm also tagging fellow member @leroy23, who lives with Kaposi's sarcoma and HIV. I hope you can connect.

Have you heard of the term "Scanxiety"? Many cancer patients experience it. It's a pretty good way to sum up those few days/hours before going for a 6-month checkup to see how your body responded to treatment. I get that.

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Replies to "So good to hear from you, @kaposi! You know we were all holding our breath. :-)..."

Smatthew | @kaposi | Jul 9, 2023

Hi @colleenyoung and thanks for following up with me. I really appreciate you. Also thanks for the possible connection with Leroy. Maybe we will be able to lean on each other, that’s my hope anyway.

Also I was unfamiliar with the word “scanxiety” however, as soon as I read it, I knew exactly what it was, and what it feels like! Wow what a crazy feeling! Thanks for sharing this with me.

My 6 month scan is this week, Tuesday. Fingers crossed!

Thanks again. Be blessed.

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