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Complex regional pain syndrome or reflex sympathetic dystrophy
Chronic Pain | Last Active: Oct 3, 2023 | Replies (185)Comment receiving replies
Hi
I had bilateral total knee surgery Jan 26 2016. I had custom knee implants by Conformis. My surgery went well, PT went well, however, I have never gone a day without pain since surgery. Burning pain up and down both legs for a long time, now pain is mostly localized to the knees. I have tried spinal blocks, gabapentin,lyrica,cymbalta, topical cremes. Nothing has really helped, my nights are always the worst, many sleepless nights in the past year. I am now trying acupuncture, which seems to help a bit. Can anyone help, at times I just feel so desperate !!
Replies to "Hi I had bilateral total knee surgery Jan 26 2016. I had custom knee implants by..."
I don't really think you should be concerned about the Conformis knee. I really believe my problem is, how my body reacted to the trauma of surgery to my nerves. I will admit, however that I have wondered about all different possibilities.Chronic pain does strange things to your mind,I believe. I do sometimes think of trying to get another surgeon to evaluate my situation at this point. I know it would be difficult to do, Most Dr's do not want to get involved.Would you be willing to give me the name of your surgeon, the one who was involved in the development of the Conformis knee ?
@mari, I am curious, why not the ocean? I am looking forward to getting away, hopefully to someplace ocean side, although I know I cannot go out in the sun during mid-day at all due to the immunosuppressants. There is something so calming about the ocean.
I was Forcefully walking in knee hi water. I thought I was really doing good for my knee - but Forcefully is the operative word. Yes i agree - There is something so calming about the ocean. that’s why - even tho I have a home in S C West, AZ - my heart is still in CA. I wish u well. Mari<br>Mari<br><br>
Water exercise is really the best exercise for any of us who have pain but need to keep moving to prevent it from getting worse. I think water PT is the best, also. It can be a hassle - getting in a suit and getting wet and all - but the rewards are worth it to me. I highly recommend water therapy.
@mari Hmm, when I walk/jog in the pool I do it fairly forcefully. What did your doctor say was wrong with that?
My son lives in southern CA, two blocks from the beach and loves it.
JK
@blindeyepug, I agree, it really is a good way to get exercise but the hassle of getting in a bathing suit, then having to change to dry clothes afterwards, I sometimes dread it. Many of the people in the classes use the hot tub afterwards but I am paranoid about that despite the club being extremely clean and the water is tested very frequently. My "reward" is going into the sauna for about five minutes.
There is a chance that you nerve damage which can cause a pain so unbearable at times. It's called Rsd. I got it after a total hip replacement. I have also tried every drug you did. I've had this Rsd since 2012. I was lucky enough to have a great pain management Dr. He is the only one who I have ever heard that uses ketamine for Rsd. It helps immensely. I take 1 opiate which he has lowered the dosage due to the big conflict of interest with the DEA AND FDA. Ketamine has just been an acceptable method of pain relief. If you would like detailed information please get back to me. I wish you much relief for your pain
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When I had PT in pool, everyone there said pool pt is better than dry PT. I told Dr. that I like to walk strongly in low water in ocean, he did not think I was ready for it at that time.