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PV positive & Jak2 neg - good thing??

Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (36)
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@buckaroobanzai

I also have polycythemia secondary to testosterone treatments. JAK2 negative.

It is possible to have PV - the cancerous form- and be JAK2 negative. This is because PV is a slow growth cancer. It takes time for cell mutations to occur at a rate that can be detected by a random blood draw.

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Replies to "I also have polycythemia secondary to testosterone treatments. JAK2 negative. It is possible to have PV..."
wendy517 | @wendy517 | Jul 5, 2023

First, love your screen name and second, that makes total sense and I'm sure how the HemoOnc doc will respond.
I think my challenge now is I may be in an anemic state after my last phlebotomy or VV (Vampire Visit) as I like to call them. I have tremendous fatigue, like how I felt when my hemoglobin was 18.6 and pretty bad shortness of breath. I'm a young 60, usually very active every day. I go for a PT evaluation tomorrow and will ask my doc to write a script for a CBC to check my numbers.

You were very helpful, thx @boomerangbonzai!

Stay strong 💪 ✨️

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