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← Return to AML, age 78, taking Decetabine/ Venetoclax, no transplant
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AML, age 78, taking Decetabine/ Venetoclax, no transplant
Blood Cancers & Disorders | Last Active: Jul 2 9:53am | Replies (51)Comment receiving replies
Hi Linda,
I am not familiar with Decetabine. I was on Vidaza and Venclexta. Congratulations on being in remission for 16 months. My hematologist/oncologist told me that the Vidaza/Vencelxta combo was a "game changer" and I went into remission pretty quickly. They are always coming out with something new. I am 71 years old and will be going into the hospital on Friday for a BMT. Keep the faith. I wish you all the best.
Jan
Replies to "Hi Linda, I am not familiar with Decetabine. I was on Vidaza and Venclexta. Congratulations on..."
@jan8. Hi Jan, I don’t know how this slipped past me but you were heading for a BMT in July! Here it is 6 months later and the major excitement should be slowing down by now! I’d love to know how your transplant experience was and how you’re feeling!
If you’d like to share your story, I have a couple of discussions I started a few years ago where I’ve encouraged other BMT members and transplant patients to ‘show and tell! I’d love to see you in one or both! ☺️
My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
~~~
Snapshots of hope: Life on the other side of transplant.
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
How are you feeling? Is your energy returning?
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We’ll all be pulling for you, Jan as you head for transplant.
I initially thought about my new stem cells as those little yellow Minions rushing through my body ready to take on the toughest jobs! Then my husband said they were more like Imperial Storm Troopers. 😂. That one I really liked! So quite frequently I had the theme for Star Wars and for the storm troopers as an ear-worm propelling me forward.
Stay strong, stay positive, you’ve got this! ☺️ May the force with with you! Keep us posted!