Complex regional pain syndrome or reflex sympathetic dystrophy

Posted by oldnana @oldnana, Mar 22, 2016

After knee replacement, I developed RSD (reflex sympathetic dystrophy). I have had severe pain in my legs for a year and half. Does anyone have suggestion as to how I may control this disease

Interested in more discussions like this? Go to the Chronic Pain Support Group.

rowan | @rowan | Apr 7, 2016

In reply to @colleenyoung "Hi @overwhelmed, Thank you for this comprehensive post about CRPS Here is the video link to..." + (show)

I watched the lecture and thought it was fabulous!!! So much information-- I'll need to watch it again. 
 
Thanks, 
 
Mariah

medic7054 | @medic7054 | Apr 7, 2016

In reply to @lolomarie "I have tried Lyrica several times but it does nothing for me." + (show)

That's why they have so many similar drugs.

overwhelmed | @overwhelmed | Apr 13, 2016

In reply to @colleenyoung "Hi @overwhelmed, Thank you for this comprehensive post about CRPS Here is the video link to..." + (show)

Thanks very much for including the proper URL that I referred to in my post Colleen. Thanks for your confirmation of this lecture to you as well Rowan. It truly is one of the most comprehensive packages that I have seen in respect to CRPS. I wish ALL doctors had to sit through that presentation (especially the ones that don't believe that there is anything wrong with you!!!!

overwhelmed | @overwhelmed | Apr 16, 2016

Just a follow-up to my reference of the cancer diagnosis that my husband had just received not long before my last post. Unfortunately, after becoming sick about three weeks ago, we found out that he only has weeks to live. His cancer started in his colon, went to the liver, lungs and bone.....all without any symptoms until 3 weeks ago. Now he is in liver failure. He has been my support for the past 8 years in dealing with CRPS until we had exhausted all treatments....& now he is going to die in a matter of weeks!!! I just want to go with him...It should have been me...I have been hoping to die as a means to escape this terrible pain. I do not have a life, it is merely an existence!!!! I will be left alone with no family and only one friend that has continued to be my friend through CRPS.

medic7054 | @medic7054 | Apr 16, 2016

In reply to @overwhelmed "Just a follow-up to my reference of the cancer diagnosis that my husband had just received..." + (show)

I am so sorry for both you and your husband. I cannot imagine 
what you are going through. Well, actually I can somewhat as 
my wife has Amyloidosis. This is a rare disease that has 
attacked both her heart and her kidneys, She is currently on 
the waiting list for a new kidney. Unlike your husband, she is 
currently stable. I also cannot imagine dealing with my pain 
without her loving support. It is frightening. 
 
 
 
My prayers are with the two of you. Keep your faith.

salena54 | @salena54 | Apr 17, 2016

In reply to @overwhelmed "Just a follow-up to my reference of the cancer diagnosis that my husband had just received..." + (show)

Over whelmed, I can't help but feel a heavy heart for you. When my husband
had his heartattact two years ago August, an thought he wouldn't make it, I
didn't know how I would live with out him. He did make it and now I try to
make sure he stays healthy. BUT, we can't know what tomorrow brings. Please
stay in touch with us, and let us know how you and your husband are doing.
Salena

salena

overwhelmed | @overwhelmed | Apr 18, 2016

In reply to @overwhelmed "Just a follow-up to my reference of the cancer diagnosis that my husband had just received..." + (show)

Thank you very much Medic7054. 
 
I wish you & your wife better health and happier days. 
There truly is not much to life if you do not have your health that is for 
sure!!! 
Do you not find it hard to look to the future with any hope? 
I feel that I have only been "existing" for the past six or seven years. 
All the best.

medic7054 | @medic7054 | Apr 19, 2016

I am not really looking forward to the rest of my life in pain, but what scares me the most is living it alone.

rowan | @rowan | Apr 20, 2016

In reply to @overwhelmed "Just a follow-up to my reference of the cancer diagnosis that my husband had just received..." + (show)

I am so sorry for your suffering...my prayers are with you that you can survive the ordeal and find that reason for living. It is out there. God bless...
Mariah