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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@loribmt

Hi @steffiney, I had Acute Myeloid Leukemia and a subsequent bone marrow transplant 4 years ago. In fact I just celebrated my 4th rebirth day June 28th and feeling 99% back to my old self. Which is quite miraculous considering my odds at diagnosis were not very encouraging. Thank you for saying so, I do quite honestly feel like a fierce warrior but unfortunately, I’m not occupying the impressive body of Wonder Woman. 😂 But pretty proud of how this old bag of bones overcame the continual challenges I deflected with my super powers. Joking aside, it’s vitally important to remain positive, keeping a sense of humor and always looking forward!

The Vitamin D for your MS symptoms is really interesting! I’m glad to hear it’s helping with your symptoms. There are so many new discoveries about the possible causes for MS along with research and treatments. It’s really positive now to have options.
Do you see a hematologist for the MGUS?

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Replies to "Hi @steffiney, I had Acute Myeloid Leukemia and a subsequent bone marrow transplant 4 years ago...."

WOW! I’m so happy to hear you won the battle! Definitely wasn’t lying when I said you were a warrior! I appreciate you chatting with me as well. Receiving a new life altering diagnosis can be a scary place. I do have a hematologist for the MGUS. He’s the one that mentioned doing the biopsy as my situation has stumped him. So now I wait after just having my blood done again. My numbers went up so I know that can’t be good 🥺