Connect
← Return to Eyes and Neuropathy
Discussion
Comment receiving replies
What a precious reply. Thank you for taking the time to write this..
No treatment in sight. Dr has ordered IVIG but no idea what insurance will do. He’s asked me to pursue UCLA in the meantime for Plasma Exchange which is what I really need right now.
I still in Awe that my Dr really believe ALL of what I am going through is a post covid complication. To have a dormant auto immune disease come to a head and wreak havoc on your CNS and cause the grief that it has is almost incomprehensible. I am living a daily nightmare.
I am also so grateful to finally have some answers after 6 months of fighting and fighting for them. Over a hundred Dr visits. Every specialist.
And with answers we have hope to pursue treatments… I have faith it will all work out and that this current state is just the Lord pruning me for a better season! 💜
Replies to "What a precious reply. Thank you for taking the time to write this.. No treatment in..."
Connect
Hi, @bri85, how are you doing today? Any word on if your insurance will cover IVIG?
Your situation has me thinking, especially you saying, "I'm the healthiest, unhealthy person". It resonated because I felt that way, too, until I came across a video from Mayo Clinic's Dr. Sletten who runs the Mayo Pain Rehab Center in Florida. He discusses chronic pain and explains Central Sensitization Syndrome (CSS). You mention having answers and seeking a treatment, which is a huge relief, however, while you go through the process of insurance and clearance, perhaps Dr. Sletten will resonate with you and provide new insight. Here is his video:
Dr. Christopher Sletten - Central Sensitization Syndrome:
I'm excited to hear your response, and whether you found it to be valuable. Will you let me know your thoughts?