Can PMR come on more gradually?

Posted by becky72 @becky72, Jun 30, 2023

Three to four years ago I had a lot of stiffness on,ly when riding in a car even for short distances. No pain but just weakness in kegs and stiffness after sitting. I went from walking 4 miles a day to not being able to walk much at all. Attributed it to afib which was permanent, the. This past December I worked out in 35 degrees all day…..overly cold and tired. Them the symptoms came in like everyone talks about. I could barely move…..searing burning pain and stiffness everywhere. Doctor gave me two ten day bursts of prednisone which helped immediately. I still have stiffness and extreme fatigue on many days. I finally got into a rheumatologist who said he couldn’t help me because my blood work didn’t show but a tiny bit of inflammation.so I take Tylenol and sleep two hours nearly every day. My primary doctor said I was a classic example of PMR but she did not take blood work when I was having flare.rheumatologist said he could not diagnose PMR without inflammatory markers. I can put up with stiffness but fatigue is so hard to deal with. Any ideas on this mess?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

I feel for those of you who can’t find a knowledgable doctor to help. I live in a large metro area and when my pcp thought maybe pmr but had limited experience with it, she referred me to a rheumatologist. That individual only took the more complex dx but the practice had one doctor who specialized in pmr and I was able to see him within a week. Wish you all the best in finding needed help.

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@freeme

I feel for those of you who can’t find a knowledgable doctor to help. I live in a large metro area and when my pcp thought maybe pmr but had limited experience with it, she referred me to a rheumatologist. That individual only took the more complex dx but the practice had one doctor who specialized in pmr and I was able to see him within a week. Wish you all the best in finding needed help.

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I agree…

I also live in a large metro area, yet still constantly run into issues of various providers not feeling comfortable or experienced with my health conditions, and/or long wait lists. But I suppose the difference is that I can keep looking and seek multiple opinions.

That’s great that each of the physicians you saw could refer you to another provider with more experience…and they had the self awareness and humility to believe you (not dismiss you), realize there were gaps in what they knew, and search for a solution, instead of letting it drop there with a shrug. Wishing you all the best as you continue to heal, too.

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