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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 21 hours ago | Replies (854)
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@steffiney

Thank you so much Lori. Obviously I’m scared to have the biopsy so wanted to see if it’s routine for MGUS.
Yes, I was diagnosed withMS as well, that is how they found the MGUS. I was told the MS was mild and because I am in my 50’s, the dr chose not to treat me. I just take 50,000 units of Vitamin D a week.

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Replies to "Thank you so much Lori. Obviously I’m scared to have the biopsy so wanted to see..."
Lori, Volunteer Mentor | @loribmt | Jul 4, 2023

I’ve had 13 bone marrow biopsies and from experience I’ve chosen to have mild sedation with mine. Three were with no sedation and the others were with the twilight sleep, the type offered with a colonoscopy. Takes about 15 minutes to have the procedure done and you wake up remembering nothing about it…no discomfort.
Experiences for people run the gamut from feeling little to nothing and others have less tolerance and would rather be out. I’m a tough old bird but finally decided to try the offered sedation…never looked back after that. Easy peasy. Woke up to Lorna Doone’s and Apple Juice. ☺️

It’s good news to hear your MS mild and not needing treatment. Were you having weakness symptoms? How was the diagnosis confirmed? With MRI and lumbar puncture?

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