Body odor without sweat -- Sjogren's Syndrome?

I was diagnosed with Sjogrens at age 28, after the birth of my first child. I haven't experienced the strong body odor you mentioned and, until recently, I hadn't experienced extreme dry eyes and mouth. I am on lots of meds currently and was wondering too, if it's the meds or Sjogrens causing the dryness. One thing I wanted to share with you about the Sjogrens is that after the birth of each child anf through menopause, I had horrible flare ups. It seems hormone fluctuation is a trigger. Wishing you the best.

My husband was a 2.5 pack a day smoker. He quit without any aids just his darn stubbornness. I always thought of stubbornness as a negative personality trait, but now I have changed my mind since it enabled him to quit smoking. He has been a non smoker now for 15 years. We both felt so sorry when my mother, a lifelong
smoker died within 4 months of being diagnosed lung cancer. So strong was her addiction that she asked her nurse to get her some cigarettes. The Nurse refused.

I have Sjogren’s Syndrome. The way to definitively diagnose this is through a lip biopsy. I’ve never heard of the odor without sweat thing. I have noticed that in my later years (I’m 64, that I have very little armpit sweat or odor.

I suspect I may have Sjogrens because I have dry mouth, dry eyes, dry skin, dry everything ! As well I have pain in my mouth on the tongue and the palate. My dentist says my teeth and gums are in perfect shape. As well I don’t sweat under my arms or on my body when doing moderate exercise. I don’t do high intensity exercise. Has anyone who has been diagnosed with Sjogrens have a similar group of symptoms?

Yes, that describes my symptoms. You should go to a rheumatologist to be diagnosed.

You should go on the John’s Hopkins Sjogren site and review the information there. I had a complicated case too where my docs all thought I had a a lot of unconnected issues. But, at Mayo AZ they did autonomic testing (tilt table), a nerve biopsy, and mast cell tests. All came back positive. Apparently in some Sjogrens affects the autonomic system and causes small cell neuroatby. I had red flushing cheeks like you, recently I noticed when I have a flare that no matter what deodorant I use my arm pits stink, I was heat intolerant, I had weird skin neuropathy: my skin would feel like it was sunburned. I see Dr, Goodman in neurology in Az and he discovered all of this. He put me on some meds that have really changed a lot of it. Most docs - even rheumatologists do not get Sjogrens patients whose symptoms go beyond their salivary glands, and eyes - it is out of their wheel house. Hope this helps!

I had the smelly armpits without sweat thing for over a year and was also tested for Sjögrens, including a salivary gland biopsy- all negative. The smell has gone now (thankfully) and I still don't know what causes it. Maybe diet or supplements?

I have Sjogrens also with the same odor problems. I wash and wash and the odor comes back 5 minutes later Trying to get in to see Dr Goodman in AZ. Long waiting list. Curious what meds helped after you saw him?

I also have related small fiber neuropathy and mast cell activation syndrome with the Sjogrens.