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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Jun 17 9:11am | Replies (504)
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@jola13

This is pretty normal - I had pain in that area for about a month - after first and second biopsy, I have ET /Chronic MPF/pre fibrotic myelofibrosis - platelets are 893, on 75mg Aspirin and 500mg HU this is my 6th day on HU. Feeling very disoriented and spaced out had a headache last night. Each day is different at the moment I guess my body is getting used to HU.
Good luck!

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Rhonda Gregory | @rjgregory440 | Jul 4, 2023

Be sure to drink at least 64 ounces of water a day when taking hydrea...it will help with the side effects...we need to flush the toxins of the medication out of our system.

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