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PV positive & Jak2 neg - good thing??

Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (36)
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@2longlife

I had a similar situation caused by taking prescribed testosterone. I am JAK2 negative. High hemoglobin and hemocrit. Stopped testosterone and had phlebotomies for 12 months until the hemoglobin number reached 17. This is considered secondary polycythemia vera. All is good now.

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Replies to "I had a similar situation caused by taking prescribed testosterone. I am JAK2 negative. High hemoglobin..."
wendy517 | @wendy517 | Jul 4, 2023

Very interesting, I'm a little perplexed again and will talk to my HemoOnc doc on the 20th and ask specifically why both oncologist I've seen say it's definitely PV. There must be something in my bloodwork? I haven't had a bone marrow biopsy yet.

Thanks for responding and that is wonderful you don't have the cancer!

Happy 4th to you and the entire group, stay strong 💪

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