Correlation between peripheral neuropathy and low RBC?

Posted by Ray Kemble @ray666, Jul 1, 2023

I have idiopathic peripheral neuropathy. I've no pain but terrible balance. I also have two swollen feet. Doctors noticed my swollen feet long before I received my PN diagnosis, but they've never figured out why. I also have a low RBC (red blood count), for which I have seen a hematologist; he didn't appear to be terribly alarmed. I'm wondering: Do any of you with PN also have swollen feet? And has anyone (doctor-type) linked it to your PN? Same thing for a low RBC: Have any of you had a low RBC connected in some credible way to your PN? I'd sure love to know.

Ray (@ray666)

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bettyg81pain | @bettyg81pain | Jul 3, 2023

If any of you are taking pregabalin, what mg are you taking daily? It is supposed to not have some of the side effects that gabapentin (which most people take) have. I still have alot of pain and keep wondering if I should up the 2 x 25 mg a day-sure I will check with dr before changing; but still want to know what most people are taking
Thanks!! Betty G

cjay | @cjay | Jul 3, 2023

In reply to @marylin14 "I only have swollen feet if I fly or don’t move them. I have terrible cramps..." + (show)

@marylin14
Have you ever taken magnesium for you leg cramps? I take 400 mg/day, no more cramps!

Ray Kemble | @ray666 | Jul 3, 2023

In reply to @jclare5269 "I have severe PN. It’s in both feet up to the bottom of my knees. I..." + (show)

Hi, jclare5269 (@jclare5269)

It sounds like your situation is far more uncomfortable. I'm lucky in that sense, I guess; my feet are simply swollen. I wear my compression stockings, but not that many hours each day. Maybe I should wear them more, but after months and months of watching the swelling––sometimes it's more, sometimes less––that's what got me wondering if the swelling is entirely linked to my PN.

Ray (@ray666)

jclare5269 | @jclare5269 | Jul 3, 2023

In reply to @ray666 "Hi, jclare5269 (@jclare5269) It sounds like your situation is far more uncomfortable. I'm lucky in that..." + (show)

Good question that hopefully a doctor can answer. My PN is more severe and they told me that I would have swelling of my feet. Though I am confused about you not having any pain. I have a lot of pain on the inside of my feet. On the outside of my feet, my nerves are dead or asleep so I have no feeling in my feet unless it’s a really hard contact and it hurts from the inside out. It’s also affected my balance or equilibrium. I have to take things slow or I have problems. I’m not diabetic and they have not found the cause.

marylin14 | @marylin14 | Jul 3, 2023

In reply to @cjay "@marylin14 Have you ever taken magnesium for you leg cramps? I take 400 mg/day, no more..." + (show)

I take 500 of magnesium mg every night. Leg cramps are still here...glad it works for you with that

Pamellia | @pamellia | Jul 4, 2023

In reply to @marylin14 "I take 500 of magnesium mg every night. Leg cramps are still here...glad it works for..." + (show)

marylin14, perhaps you might try another type of Magnesium. You don't say which kind you used. I take 1,000 mg of Magnesium Citrate daily. Often I take 1,500 mg. If you take too much for your body, you may end up with diarrhea. Citrate supposedly enables Magnesium to be better absorbed. I take half in the morning and half at night.