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Eyes and Neuropathy

Eye Conditions | Last Active: Dec 23, 2023 | Replies (299)

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@johnbishop

Hello @bri85, Welcome to Connect. Since you mentioned Sjögrens Syndrome and having lots of issues with your eyes, I thought you might find the following discussions of interest.

--- Dry eyes from Sjogrens: https://connect.mayoclinic.org/discussion/dry-eyes-from-sjogrens/
--- How do you deal with dry eyes?: https://connect.mayoclinic.org/discussion/dry-eyes-1/
--- Sjögren’s Syndrome: how do you manage the symptoms?: https://connect.mayoclinic.org/discussion/sjorgens-syndrome/.

Did your doctor explain why he thought a plasma exchange would help?

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Replies to "Hello @bri85, Welcome to Connect. Since you mentioned Sjögrens Syndrome and having lots of issues with..."

He said treating the Sjögrens would subsequently treat the neuropathy. Plasma exchange would rid my body of the bad antibodies that are attacking my system and replace them with healthy ones. And that I would soon after feel “all better” with the discomfort I am experiencing. (I have autonomic dysfunction and it’s affected my heart terribly. I have severe tachycardia all the time and take metoprolol 3-6 times a day to keep my heart rate under 100.)
Dr says I am only moderately treating the hydroxychloroquine I am on and said I would benefit From a more aggressive treatment such as Plasma. If my insurance denies it as expected, then IVIG is the secondary treatment plan assuming that’s approved. But it is a treatment whereas the Plasma is more of a cure like treatment. As far as my eyes, I’m being told nothing is wrong with my eyes BUT they always hurt and I have a lot of trouble focusing and concentrating on things. It is way more than dry eyes as of late. The more I research the more I find neuropathy definitely can cause the symptoms I am experiencing.