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PV positive & Jak2 neg - good thing??

Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (36)
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@wendy517

I agree, I dumped my first one who was positive I did not have PV, I trusted my GP more, found another doc who I really like and my GP wrote the script for the phlebotomies to get me to 13. Had 3 draws done before I met with the 2nd HemoOnc doc and he confirmed.
BTW, the first arrogant doc was dancing around my test results. My sister was on the call with me and she finally ask, So, does she have PV or not and he said I do. He cost me 2 weeks of suffering with debilitating headaches.
I'm all about 2nd opinions, 3rd and 4th if needed. We all have to go with our gut, push with questions and be our own advocate. I'm blessed with an amazing MDVIP doc who is an excellent diagnostician.

Happy 4th everyone, happy birthday America 🇺🇸 💙

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Replies to "I agree, I dumped my first one who was positive I did not have PV, I..."
casevin7 | @casevin7 | Jul 3, 2023

I had a doctor in Houston that I really liked and who believed I have secondary or non cancerous PV, but he moved. So it was back to the original hematologist who says I have skin tags causing my high blood numbers. Never mind that I can list almost every one of the symptoms that I have that match case book patients.
Fortunately, doc has scheduled me for labs and phlebotomy when I feel it's time. I know my body after 72 years and can pretty much tell when my hematocrit is high.
In the interim, I am searching for a new doctor, but living in a small town I am limited with choices. So I am searching the Houston base doctors.
Good luck to you.

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