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PV positive & Jak2 neg - good thing??

Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (36)
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@casevin7

It's crazy but yes I am in that same situation. And to top it off both my mom and her mom had blood disorders that eventually took their lives.
I'm not sure that all doctors are up to date.

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wendy517 | @wendy517 | Jul 3, 2023

I agree, I dumped my first one who was positive I did not have PV, I trusted my GP more, found another doc who I really like and my GP wrote the script for the phlebotomies to get me to 13. Had 3 draws done before I met with the 2nd HemoOnc doc and he confirmed.
BTW, the first arrogant doc was dancing around my test results. My sister was on the call with me and she finally ask, So, does she have PV or not and he said I do. He cost me 2 weeks of suffering with debilitating headaches.
I'm all about 2nd opinions, 3rd and 4th if needed. We all have to go with our gut, push with questions and be our own advocate. I'm blessed with an amazing MDVIP doc who is an excellent diagnostician.

Happy 4th everyone, happy birthday America 🇺🇸 💙

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