Hi! Thanks for sharing. To tell you the truth, I’m afraid of trying Cymbalta, Lyrica, or gabapentin. I know most things have side effects, but the potential psychological effects and not being able to stop cold turkey and potentially having withdrawal symptoms… Eep. I have central sensitivity (the central nervous system/brain adapts to become more sensitive to pain; new environments, experiences and medications can trigger it).
It’s also never sounded very convincing to me that when my doctors introduce it, even they sound unconvinced: “Well, we could try a Lyrica or…” with kind of a shrug.
I do take LDN (low dose naltrexone), but I don’t know that it’s helping my pain; it seems more to help with fatigue.
I hear you on: “ I would love to have less pain, but right now I'm more concerned with staying functional.” I hope you’re able to get connected with a new care team and PT(s). It’s always been tough for me to find someone who’s a good fit.
Don’t be afraid to try everything! I’ve gone through all the nerve medications. They don’t work for me. I’ve gone through all the NSAIDs only a few work for me. The low-dose Percocet is the only opioid that works for me over 30 years and because arthritis itself is not painful. I’m sorry to say after 30 years of dealing with it. It’s usually an inflammatory property that has to be controlled. For me it started with the recommendation taking ZAZZEE tart cherry capsules. It’s sold on Amazon for 20 bucks. It got rid of my arthritis. Pain in 24 hours in my hands. I complain to the doctor and she said be thankful. And I said no you’ve been sending me to specialist for 30 years. I wanna know what the deal is. It’s a simple test for uric acid. My uric acid was out the roof. That means I have gout arthritis something The specialist don’t look for. They test for RA. They look at the x-rays and they say oh you have OA and that presents like RA but I test negatively for RA for 30 years. Turns out it was the gout keep the door open always. I also exercise now a lot after having many joints replaced. With all the joint replacements, I really didn’t get rid of the inflammatory pain which happens where my joints are required to move a lot like in my hands, my wrist and my neck. I am now on allopurinol, which doesn’t really have much in the way of side effects and that takes care of most of it, but some days are extra special bad so then I’ll take the ZAZZEE in addition to The once a day allopurinol. This weekend I did exercise and weeding and did a lot compared to what I did 10 or 15 years ago. There’s hope it can take a long time. Good luck.