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I am 37F. Normally extremely healthy. I’ve been having a plethora of problems recently. Officially now diagnosed with both Sjögrens Syndrome & Peripheral Small Fiber Neuropathy. I have been having a LOT of issues with my eyes but ophthalmologist says they look very healthy. No answers led me down a search online where I’ve found so many posts about weakened eyes and trouble focusing as well as eye pain due to their neuropathy, which I am having. I’ve plugged my tear ducks to help with the dryness and although I am seeing just fine as far as my vision is concerned, it feels very difficult to see since the pain and sensitivity in my eyes are always present. I want to shut my eyes all the time. Light bothers them, focusing bothers them. I am the healthiest unhealthy person I know. I’m a mess! Doc says I’d benefit from Plasma Exchange but that my insurance will never go for it. Maybe one day…
Replies to "I am 37F. Normally extremely healthy. I’ve been having a plethora of problems recently. Officially now..."
There are a few Covid vaccine-injured people whose eyes have documented trouble with tracking. Vaccine injuries are similar to long Covid. These patients had trouble being diagnosed initially and now wear special glasses. One patient had her husband video her eye movements while trying to focus on the horizon in a moving car. That helped her doctors tremendously in identifying the problem.
You could connect with these patients by joining the Neuro V Long-Haulers Facebook group.
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Hey there @bri85 - I'm so sorry you're struggling with all of these conditions and your eyes are giving you grief. I have been where you are, not with exact diagnosis but ultimately being diagnosed with Central sensitization syndrome. Prior was diagnosed at 41 with a corneal disease needing eye surgeries, then B12 levels were off causing small fiber neuropathy...blah, blah, blah.
I do feel for you especially at a younger age it seems to make everything that much more difficult . It's rotten to have your eyes affected but the key takeaway is that you've been told you're eyes are healthy so this is more central nervous system dysfunction. It's good to hear your doctor has a plan for you. My best advice is to stay positive find solace in the fact that your eyes are healthy it's just that they are annoying you right now. Try to think positive and take one day at a time. Have you tried ways of calming such as meditation distraction journaling or humor? I'm sending lots of positive vibes. Hold On tight you'll get through this! Are you scheduled for your first treatment yet?